
A Parents' Guide to PANDAS, PANS, and Related Neuroimmune Disorders
Information, Support, and Advice
$49.16
- Paperback
160 pages
- Release Date
14 June 2019
Summary
Having a child who suddenly develops PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Strep), PANS (Pediatric Acute-onset Neuropsychiatric Syndrome) or related conditions such as encephalitis can be a daunting challenge for parents. This clear guide explains the symptoms and diagnosis of PANDAS and PANS, with treatment options and recommended strategies for supporting children at home, at school, and in community settings.
The book covers key symptoms including …
Book Details
| ISBN-13: | 9781785927683 |
|---|---|
| ISBN-10: | 178592768X |
| Author: | Patricia Rice Doran, Christine Leininger Amabile, Diana Pohlman, Tiffany Tumminaro, Heather Rain Mazen Korbmacher |
| Publisher: | Jessica Kingsley Publishers |
| Imprint: | Jessica Kingsley Publishers |
| Format: | Paperback |
| Number of Pages: | 160 |
| Release Date: | 14 June 2019 |
| Weight: | 260g |
| Dimensions: | 229mm x 154mm x 9mm |
What They're Saying
Critics Review
A Parent’s guide to PANDAS, PANS and Related Neuroimmune Disorders is dramatic as it is revealing written by those on the front-line of these debilitating illnesses. This highly-readable guide forces us rethink our definitions of mental illness. Above all, this guide offers coping strategies, hope and optimism the general medical community is unable to give. – Tim Sorel, Professor, University of Florida, Producer/Director of My Kid is Not Crazy: a search for hope in the face of misdiagnosis
A Parents’ Guide to PANDAS, PANS and Related Neuroimmune Disorders will be a dog-eared, high-lighted, bookmarked constant companion for parents of children with PANS! It packs practical recommendations for parents from parents, with illustrative case vignettes, up-to-date information, and tools for navigating the journey to healing. It will help parents understand these disorders, work collaboratively with medical and educational professionals and care for their children and themselves. I will recommend it to my patients’ families and their medical and educational care teams. – Margo Thienemann MD, Director of PANS Program Psychiatry, Clinical Professor of Psychiatry, Stanford University School of Medicine
About The Author
Patricia Rice Doran
Patricia Rice Doran is Assistant Professor of Special Education at Towson University, Maryland.
Christine L. Amabile is a Licensed Clinical Social Worker, currently working full time in the school system and part time as a private practice outpatient therapist.
Wendy Nawara is a social worker and founder of PANDAS/PANS Advocacy and Support, a family support non-profit. She lives in Illinois.
Diana Pohlman is founder and Chairman of the Board of PANDAS Network, the primary research non-profit in the USA. She lives in California.
Tiffany Tumminaro has been practicing as a social worker since 2004, and is an active member of the PANDAS/PANS Advisory Board through the Illinois Department of Public Health.
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