Follow the Child

This beautiful and heartfelt book is full of meaningful stories and concrete advice for families and healthcare providers caring for children with serious illness. It is a treasure and a wonderful resource that can help us all continue to love and support children throughout their lives. – Jori Bogetz, Assistant Clinical Professor of Pediatrics, UCSF Benioff Children’s HospitalThis invaluable book will be of enormous help to other parents treading this rather tortuous and sometimes agonising path towards top quality care at the end of life. It is a heartfelt account of Sacha’s personal experience, with useful practical information, helpful insights, and guidance supporting better conversations and choices. – Keri Thomas, National Clinical Lead, The National GSF Centre for End of Life CareIn openly and honestly sharing the “difficult conversations” she had with her son, his medical team, and family and friends, Sacha has reframed the narrative around paediatric palliative care to show that a good death is possible when end of life planning is done well. Follow the child is both a beautiful account of a mother’s love and a practical guide for anyone caring for a life limited child – Stephanie Nimmo, Author, Was this in the plan?This book would be extraordinarily useful for any parent faced with the problems of a dying child. Anybody working in palliative care, particularly pediatric palliative care, would benefit from reading this book. – International Association for Hospice and Palliative Care

Sacha Langton-Gilks is a singing teacher, garden consultant, writer and child health campaigner. She is the Lead Champion of The Brain Tumour Charity’s HeadSmart Campaign, and advocates for many other charities.