Being Emma
living my best life with butterfly skin
$63.56
- Paperback
280 pages
- Release Date
30 September 2025
Summary
Being Emma: The Butterfly Who Soared
Born with Epidermolysis Bullosa (EB), a rare and excruciatingly painful condition that makes her skin as fragile as butterfly wings, Emma Fogarty was not expected to survive infancy. Today, at 41 years of age, she is the oldest living Irish person with the condition, continuing to defy the odds with extraordinary strength, resilience and remarkable achievements.
However, every accomplishment Emma makes comes with its own set of obstacles.…
Book Details
| ISBN-13: | 9781785375682 |
|---|---|
| ISBN-10: | 1785375687 |
| Author: | Emma Fogarty |
| Publisher: | Merrion Press |
| Imprint: | Merrion Press |
| Format: | Paperback |
| Number of Pages: | 280 |
| Release Date: | 30 September 2025 |
| Weight: | 0g |
| Dimensions: | 234mm x 153mm |
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About The Author
Emma Fogarty
Emma Fogarty lives in Laois and is one of just 300 Irish sufferers of Epidermolysis Bullosa, a painful disease which makes her skin as fragile as a butterfly’s wing. At 41, she is the oldest living Irish person with the condition. As an ambassador for DEBRA Ireland, she took part in the Dublin Marathon alongside her close friend Colin Farrell, raising almost €1 million for the organisation. This is her story.
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