The Story Within, 9781421410968
Paperback
Shares experiences of living with genetic disorders. This title includes stories that illustrate the complexities involved in making decisions about genetic diseases: whether to be tested, who to tell, whether to have children, and whether and how to treat children medically, if treatment is available.

The Story Within

personal essays on genetics and identity

$73.63

  • Paperback

    280 pages

  • Release Date

    14 December 2013

Check Delivery Options

Summary

The contributors to The Story Within share powerful experiences of living with genetic disorders. Their stories illustrate the complexities involved in making decisions about genetic diseases: whether to be tested, who to tell, whether to have children, and whether and how to treat children medically, if treatment is available. More broadly, they consider how genetic information shapes the ways we see ourselves, the world, and our actions within it. People affected by genetic disease respond …

Book Details

ISBN-13:9781421410968
ISBN-10:1421410966
Author:Amy Boesky
Publisher:Johns Hopkins University Press
Imprint:Johns Hopkins University Press
Format:Paperback
Number of Pages:280
Release Date:14 December 2013
Weight:386g
Dimensions:229mm x 152mm x 17mm
What They're Saying

Critics Review

When medical students really feel that they understand genetics… let them read The Story Within and be brought down to earth with a bang. I know I was.

A compelling collection of essays that address the experiences of many who have genetically based illnesses… These pieces can comfort those in similar situations; inform friends, relatives, and caregivers; enlighten health providers; and help us all better understand how others experience the world in which we live. VERDICT Recommended for those who are touched by genetic disorders or are interested in health in the modern world. Library Journal If there were an All-Star Team for memoirists struggling with genetic misfortune… The Story Within would surely be it. – Patrick Tracey PsychCentral Thought provoking, moving and extremely interesting. – Jane Brown Nursing Times For those who have traveled a similar path and who have faced genetic illnesses, these stories can be a source of comfort. These stories can also help inform and educate and generate much needed dialogue about health and body norms. The narratives in The Story Within are a reminder that every life has value. – Dena Hurst Metapsychology The Story Within is a true success of a collection. With joy, rigor, and respect, it strvies to reconcile something like the original (one-of-a-kind) and the originator (universal), the literal (DNA) and the literary (collected essays). Original review below – Adrien Guignard Gesnerus The Story Within est un collectif reussi. Il s’efforce avec bonheur, rigueur et respect de concilier quelque chose comme l’orignal (singulier) et l’originaire (universel), le litteral (de l’ADN) et le litteraire (des textes reunis). – Adrien Guignard Gesnerus

About The Author

Amy Boesky

Amy Boesky is an associate professor of English at Boston College and author of What We Have: A Memoir.

Returns

This item is eligible for free returns within 30 days of delivery. See our returns policy for further details.